Sometimes lupus life overwhelms me and every fear, anxiety, frustration, anger, pain and sadness pours out of my eyes, flooding my cheeks. I’m content not knowing why I cried. Maybe my body felt too much and it decided to weep on my behalf.
I want to share some happy lupus blog news with you and I promise to explain my reason why at the end of my article. (No cheating and scrolling to the end.)
Hopefully, one day there will be a cure for lupus and the lupus loop will dissolve forever. Until then, please hold onto hope with me, & let lupus loop-us.
I received an email announcing that my blog was chosen as one of the top 30 lupus blogs. Feeling dumbfounded is an understatement. You could have knocked me over with a feather (as one of my friends says).
I woke up with a romantic notion, feeling dared to find ways in which having lupus is not always a bad thing. Surely somewhere in this, or any chronic disease, there has to be a tiny bit of positivity.
My vision is a place where people with chronic illnesses can own homes and live among fellow spoonies. A spoonie community. A spoonity.
While no individual physician may meet all of our health needs, or have exhaustive knowledge on any specific disease, that should not excuse doctors from failing to provide care to the point where it may be detrimental to our well-being.
My psychologist wants to wean me off of my anxiety medications. Fine, super, go ahead. I can do this. (I lie to myself.) During our 10 minute session, she asked… Read more »
My lupus requires me to see many doctors and specialists: rheumatologist, neurologist, nephrologist, primary care, ophthalmologist, infusion nurse, neuro-radiologist, and neurosurgeon. (I think that’s all.) I have spent countless hours… Read more »