My 2nd guest writer is a wife whose husband has lupus. She shares their emotionally moving journey that led to his diagnosis. While lupus effects mostly women, it’s important to know and spread the word that men can have lupus too.
I entered the courthouse, filed into the mandatory security screening. Then I was shocked silent from the verbal brutality. (It is my private business that I have a lupus handicap.)
My choices were rather simple and straight forward: 1. undergo brain surgery, or 2. risk potential paralysis
The stickers and wires attached to my body made the landscape of my skin look like a colorful spider web.
I received an email announcing that my blog was chosen as one of the top 30 lupus blogs. Feeling dumbfounded is an understatement. You could have knocked me over with a feather (as one of my friends says).
The top three things you can do right now to reduce the pain of your chronic disease. These three methods have been shown to significantly reduce pain and put many conditions into remission.
I woke up with a romantic notion, feeling dared to find ways in which having lupus is not always a bad thing. Surely somewhere in this, or any chronic disease, there has to be a tiny bit of positivity.
My vision is a place where people with chronic illnesses can own homes and live among fellow spoonies. A spoonie community. A spoonity.
While no individual physician may meet all of our health needs, or have exhaustive knowledge on any specific disease, that should not excuse doctors from failing to provide care to the point where it may be detrimental to our well-being.
I’m a bit miffed at my neurologist. In the 7 years I have been under his care, he’s never mentioned glasses of this sort. These glasses would have helped tremendously. Well doc, put on your big boy tighty whities because we have something discuss…