I woke up with a romantic notion, feeling dared to find ways in which having lupus is not always a bad thing. Surely somewhere in this, or any chronic disease, there has to be a tiny bit of positivity.
My vision is a place where people with chronic illnesses can own homes and live among fellow spoonies. A spoonie community. A spoonity.
While no individual physician may meet all of our health needs, or have exhaustive knowledge on any specific disease, that should not excuse doctors from failing to provide care to the point where it may be detrimental to our well-being.
I’m jealous of a dog. Not just any dog, I’m jealous of my mom’s dog because her dog has lupus. Don’t bother beating me up with judgements of how pathetic… Read more »
May is lupus awareness month. Bringing publicity to lupus can make a difference in funding research and hopefully finding a cure. On a personal level, when is the right time to make others aware of your lupus?
Looking back on my life, I distinctly see times where I experienced lupus flares and remissions, despite a lack of a proper lupus diagnosis. The flares always involved a visit… Read more »