I woke up with a romantic notion, feeling dared to find ways in which having lupus is not always a bad thing. Surely somewhere in this, or any chronic disease, there has to be a tiny bit of positivity.
My vision is a place where people with chronic illnesses can own homes and live among fellow spoonies. A spoonie community. A spoonity.
My lupus requires me to see many doctors and specialists: rheumatologist, neurologist, nephrologist, primary care, ophthalmologist, infusion nurse, neuro-radiologist, and neurosurgeon. (I think that’s all.) I have spent countless hours… Read more »