How can I help You With Your Lupus?
My vision is a place where people with chronic illnesses can own homes and live among fellow spoonies. A spoonie community. A spoonity.
Tag: malaise
Dear Doctor, You’re Fired! – When it’s Time to Change Lupus Docs
While no individual physician may meet all of our health needs, or have exhaustive knowledge on any specific disease, that should not excuse doctors from failing to provide care to the point where it may be detrimental to our well-being.
Lupus Medications are my Chronic Illness Reality
My psychologist wants to wean me off of my anxiety medications. Fine, super, go ahead. I can do this. (I lie to myself.) During our 10 minute session, she asked… Read more »
Lupus is Making Me Crazy!
When I was diagnosed with lupus, I declared, “I have lupus. I’m not crazy.” But now I’m not so sure. I think having lupus might be making me crazy. Bonkers. … Read more »
Glittery Snow Makes Purple Lupus Toes – Raynaud’s Phenomenon
A couple of days after a snow fall, I love seeing a field of undisturbed snow, warming under a radiant sun, glittering enchantingly. As I bask in the beauty of the white, bedazzled landscape, my toes recoil deep into their wool sacks (socks).