Tag: photosensitivity

Must Love Lupus

If I were single, how could I possible find a grain of energy to date someone? My nature is to remain reticence where I am safe. But the desire to find a companion might catapult me off the couch and onto the computer, searching for love despite my lupus and chronic illnesses.

Lupus Medications are my Chronic Illness Reality

My psychologist wants to wean me off of my anxiety medications.  Fine, super, go ahead.  I can do this.  (I lie to myself.)  During our 10 minute session, she asked… Read more »

Finally Diagnosed With Lupus. Phew…

Looking back on my life, I distinctly see times where I experienced lupus flares and remissions, despite a lack of a proper lupus diagnosis. The flares always involved a visit… Read more »

Reynauld's phenomenon

Glittery Snow Makes Purple Lupus Toes – Raynaud’s Phenomenon

A couple of days after a snow fall, I love seeing a field of undisturbed snow, warming under a radiant sun, glittering enchantingly. As I bask in the beauty of the white, bedazzled landscape, my toes recoil deep into their wool sacks (socks).