If I were single, how could I possible find a grain of energy to date someone? My nature is to remain reticence where I am safe. But the desire to find a companion might catapult me off the couch and onto the computer, searching for love despite my lupus and chronic illnesses.
When you are a teenager or young adult, chronic illness derails your life. You are trying to do everything your healthy friends and peers are doing, but most of the time you just can’t.
I haven’t written for a while and I apologize. Lupus dominated my life over the past couple of months. The physical and emotional stress all culminated into a lupus meltdown.
My choices were rather simple and straight forward: 1. undergo brain surgery, or 2. risk potential paralysis
The stickers and wires attached to my body made the landscape of my skin look like a colorful spider web.
My vision is a place where people with chronic illnesses can own homes and live among fellow spoonies. A spoonie community. A spoonity.
While no individual physician may meet all of our health needs, or have exhaustive knowledge on any specific disease, that should not excuse doctors from failing to provide care to the point where it may be detrimental to our well-being.
I’m a bit miffed at my neurologist. In the 7 years I have been under his care, he’s never mentioned glasses of this sort. These glasses would have helped tremendously. Well doc, put on your big boy tighty whities because we have something discuss…
My psychologist wants to wean me off of my anxiety medications. Fine, super, go ahead. I can do this. (I lie to myself.) During our 10 minute session, she asked… Read more »
I need to woman up and make a lupus confession. I have been promoting lupus-life hacks, and I don’t use all of them, some, but not all. I owe you… Read more »