Tag: csf leak

Must Love Lupus

If I were single, how could I possible find a grain of energy to date someone? My nature is to remain reticence where I am safe. But the desire to find a companion might catapult me off the couch and onto the computer, searching for love despite my lupus and chronic illnesses.

lupus chiari

Lupus, CSF Leak, Chiari – Oh MY!

My choices were rather simple and straight forward: 1. undergo brain surgery, or 2. risk potential paralysis

Dear Doctor, You’re Fired! – When it’s Time to Change Lupus Docs

While no individual physician may meet all of our health needs, or have exhaustive knowledge on any specific disease, that should not excuse doctors from failing to provide care to the point where it may be detrimental to our well-being.