Sometimes lupus life overwhelms me and every fear, anxiety, frustration, anger, pain and sadness pours out of my eyes, flooding my cheeks. I’m content not knowing why I cried. Maybe my body felt too much and it decided to weep on my behalf.
I apologize for my lengthy leave of absence on my blog. There has been dissention in my body – lupus complications plague me. I’m running on a lupus hamster wheel (and not losing any weight in the process – thank you very much).
I’m honored to share a guest article written by Emily who has lupus. She authors a blog which she credits as being her “online diary of life with a chronic illness”. Emily’s fluid writing style reads as if she’s having a conversation with you. I admire her candidness about how lupus affects her life.
I haven’t written for a while and I apologize. Lupus dominated my life over the past couple of months. The physical and emotional stress all culminated into a lupus meltdown.
Hopefully, one day there will be a cure for lupus and the lupus loop will dissolve forever. Until then, please hold onto hope with me, & let lupus loop-us.
My 2nd guest writer is a wife whose husband has lupus. She shares their emotionally moving journey that led to his diagnosis. While lupus effects mostly women, it’s important to know and spread the word that men can have lupus too.
My choices were rather simple and straight forward: 1. undergo brain surgery, or 2. risk potential paralysis
My vision is a place where people with chronic illnesses can own homes and live among fellow spoonies. A spoonie community. A spoonity.
While no individual physician may meet all of our health needs, or have exhaustive knowledge on any specific disease, that should not excuse doctors from failing to provide care to the point where it may be detrimental to our well-being.
My psychologist wants to wean me off of my anxiety medications. Fine, super, go ahead. I can do this. (I lie to myself.) During our 10 minute session, she asked… Read more »