Category: raynaud’s

Must Love Lupus

If I were single, how could I possible find a grain of energy to date someone? My nature is to remain reticence where I am safe. But the desire to find a companion might catapult me off the couch and onto the computer, searching for love despite my lupus and chronic illnesses.

Lupus Loop

When Lupus Throws You for a Loop

Hopefully, one day there will be a cure for lupus and the lupus loop will dissolve forever. Until then, please hold onto hope with me, & let lupus loop-us.

Dear Doctor, You’re Fired! – When it’s Time to Change Lupus Docs

While no individual physician may meet all of our health needs, or have exhaustive knowledge on any specific disease, that should not excuse doctors from failing to provide care to the point where it may be detrimental to our well-being.

Lupus Medications are my Chronic Illness Reality

My psychologist wants to wean me off of my anxiety medications.  Fine, super, go ahead.  I can do this.  (I lie to myself.)  During our 10 minute session, she asked… Read more »

Reynauld's phenomenon

Glittery Snow Makes Purple Lupus Toes – Raynaud’s Phenomenon

A couple of days after a snow fall, I love seeing a field of undisturbed snow, warming under a radiant sun, glittering enchantingly. As I bask in the beauty of the white, bedazzled landscape, my toes recoil deep into their wool sacks (socks).