Lupus, CSF Leak, Chiari – Oh MY!
My choices were rather simple and straight forward: 1. undergo brain surgery, or 2. risk potential paralysis
Tag: systemic lupus erythematosus
I’m on the Top 30 Lupus Blogs…”Say What?”
I received an email announcing that my blog was chosen as one of the top 30 lupus blogs. Feeling dumbfounded is an understatement. You could have knocked me over with a feather (as one of my friends says).
How can I help You With Your Lupus?
My vision is a place where people with chronic illnesses can own homes and live among fellow spoonies. A spoonie community. A spoonity.
Dear Doctor, You’re Fired! – When it’s Time to Change Lupus Docs
While no individual physician may meet all of our health needs, or have exhaustive knowledge on any specific disease, that should not excuse doctors from failing to provide care to the point where it may be detrimental to our well-being.
Migraine Glasses! Who Knew?
I’m a bit miffed at my neurologist. In the 7 years I have been under his care, he’s never mentioned glasses of this sort. These glasses would have helped tremendously. Well doc, put on your big boy tighty whities because we have something discuss…
Lupus Confession
I need to woman up and make a lupus confession. I have been promoting lupus-life hacks, and I don’t use all of them, some, but not all. I owe you… Read more »
How to Give Better Lupus Support
Friends, family, colleagues, caregivers, medical staff or anyone who deals with or has someone in their life with lupus, this article discusses how you can lend lupus support. If you… Read more »
Lupus Depression
My Depression Speaks “You’re a lazy blob.” The gremlins cackled. “I’m not lazy, I have lupus.” I replied. “Lupus shmoopus, you space waster. You’ve been perfecting that dent on the… Read more »
Ready or Not, I’m Sharing My Lupus
It’s time for me to start sharing my lupus story. I have SLE, systemic lupus erythematosus, where my entire body is affected by this disease: skin, organs, kidneys (lupus nephritis),… Read more »
Finally Diagnosed With Lupus. Phew…
Looking back on my life, I distinctly see times where I experienced lupus flares and remissions, despite a lack of a proper lupus diagnosis. The flares always involved a visit… Read more »