How can I help You With Your Lupus?
My vision is a place where people with chronic illnesses can own homes and live among fellow spoonies. A spoonie community. A spoonity.
Category: systemic lupus erythematosus
Dear Doctor, You’re Fired! – When it’s Time to Change Lupus Docs
While no individual physician may meet all of our health needs, or have exhaustive knowledge on any specific disease, that should not excuse doctors from failing to provide care to the point where it may be detrimental to our well-being.
Lupus Confession
I need to woman up and make a lupus confession. I have been promoting lupus-life hacks, and I don’t use all of them, some, but not all. I owe you… Read more »
Lupus Depression
My Depression Speaks “You’re a lazy blob.” The gremlins cackled. “I’m not lazy, I have lupus.” I replied. “Lupus shmoopus, you space waster. You’ve been perfecting that dent on the… Read more »
Ready or Not, I’m Sharing My Lupus
It’s time for me to start sharing my lupus story. I have SLE, systemic lupus erythematosus, where my entire body is affected by this disease: skin, organs, kidneys (lupus nephritis),… Read more »
Finally Diagnosed With Lupus. Phew…
Looking back on my life, I distinctly see times where I experienced lupus flares and remissions, despite a lack of a proper lupus diagnosis. The flares always involved a visit… Read more »
Glittery Snow Makes Purple Lupus Toes – Raynaud’s Phenomenon
A couple of days after a snow fall, I love seeing a field of undisturbed snow, warming under a radiant sun, glittering enchantingly. As I bask in the beauty of the white, bedazzled landscape, my toes recoil deep into their wool sacks (socks).