Lupus, CSF Leak, Chiari – Oh MY!
My choices were rather simple and straight forward: 1. undergo brain surgery, or 2. risk potential paralysis
My choices were rather simple and straight forward: 1. undergo brain surgery, or 2. risk potential paralysis
The stickers and wires attached to my body made the landscape of my skin look like a colorful spider web.
I received an email announcing that my blog was chosen as one of the top 30 lupus blogs. Feeling dumbfounded is an understatement. You could have knocked me over with a feather (as one of my friends says).
I woke up with a romantic notion, feeling dared to find ways in which having lupus is not always a bad thing. Surely somewhere in this, or any chronic disease, there has to be a tiny bit of positivity.
My vision is a place where people with chronic illnesses can own homes and live among fellow spoonies. A spoonie community. A spoonity.
While no individual physician may meet all of our health needs, or have exhaustive knowledge on any specific disease, that should not excuse doctors from failing to provide care to the point where it may be detrimental to our well-being.
I’m jealous of a dog. Not just any dog, I’m jealous of my mom’s dog because her dog has lupus. Don’t bother beating me up with judgements of how pathetic… Read more »
My psychologist wants to wean me off of my anxiety medications. Fine, super, go ahead. I can do this. (I lie to myself.) During our 10 minute session, she asked… Read more »
I need to woman up and make a lupus confession. I have been promoting lupus-life hacks, and I don’t use all of them, some, but not all. I owe you… Read more »
Friends, family, colleagues, caregivers, medical staff or anyone who deals with or has someone in their life with lupus, this article discusses how you can lend lupus support. If you… Read more »